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  Beckwith-Wiedemann Support Network

 Website

www.beckwith-wiedemann.org  

 Description


Beckwith-Wiedemann Syndrome (BWS) is a congenital growth related disorder. There are roughly thirty characteristics which can be associated with BWS. Most often seen are enlarged tongue, umbilical hernia, and increased birthweight. These children are also at risk of developing hypoglycemia at birth and various types of tumors. The Beckwith-Wiedemann Support Network (BWSN) was established in 1989 to provide information and peer support to families and individuals affected by BWS, and to facilitate the exchange of information between parents and interested health professionals.

 


 Contact Info

Email:    a800bwsn@aol.com Phone: (800) 837-BWSN
Address:  2711 Colony Road
Ann Arbor MI 48104
USA

 

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