|
Description
|
The Cornelia de Lange Syndrome Foundation is an organization dedicated to ensuring early and accurate diagnosis of CdLS ( a congenital syndrome, present from birth, that usually results in significant delays in growth and development), promoting research, and enabling families, friends, and professionals to make informed decisions and plan for the affected person's present and future. Services include a Family Support Program supplemented by regional gatherings and coordinators; a Scientific Advisory Committee which offers professional expertise to families at no cost. Conference held annually for families and professionals. Hours of operation are from 8am-5pm EST, Monday-Friday; answering machine at all other times.
|
|
Powered by A-Z Support Services