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We hope these selections are helpful to those experiencing grief or assisting others. The Organization and Services include some samplings of individual opinion. They are provided for your information, but do not necessarily reflect the views of our organization or experts.
 
 Name of Organization(s) Under Category " Chronic Illness and Disability(Mastectomy,Birth Defects,Accidents,Amputation ) "
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ABLEDATA
The ABLEDATA project provides information resources on assistive devices and rehabilitation equipment products for people with disabilities, including the ABLEDATA database of product information, ...
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Access Board: United States Architectural and Transportation Barriers Compliance Board
Created in 1973, the Board is the federal agency which develops minimum guidelines and requirements for standards issued under the Americans with Disabilities Act (ADA) and the Architectural Barriers ...
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Adaptive Technology Resource Centre
The ATRC is involved in research and development to find innovative solutions to accessibility challenges. We also provide training, consultation, and information to help both educators and users to ...
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Alpha1 Association
The goal of this nonprofit organization is to further support, education, and research efforts for individuals and their families affected by alpha1-antitrypsin deficiency (A1AD).
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American Academy of Podiatric Sports Medicine
A professional, member organization, AAPSM was founded in 1970 by a group of podiatric sports physicians who saw the need for a podiatric sports medicine association devoted to the treatment of ...
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American Association of Diabetes Educators
The American Association of Diabetes Educators (AADE) was founded as a multidisciplinary organization working to foster communication and cooperation among individuals and organizations involved in ...
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American Behcet's Disease Association
The American Behcet's Disease Association, formerly the American Behcet's Association, Inc., was established in 1978 to find a cure for Behcet's disease and to gather and disseminate information ...
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American Burn Association National Headquarters Office
This is an international, multi-disciplinary organization of health professionals that provide care and rehabilitation to burn patients, conduct burn-related research, educate burn team members, ...
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American Cleft Palate-Craniofacial Association Cleft Palate Foundation
The American Cleft Palate-Craniofacial Association (ACPA) is an international, non-profit medical society of health care professionals, from 30 disciplines and 40 countries, who treat and/or research ...
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American Diabetes Association
The American Diabetes Association (ADA), formed in 1940, was created to fight diabetes through education and research. Local chapters and affiliates use volunteers to organize educational and ...
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American Juvenile Arthritis Organization
The American Juvenile Arthritis Organization (AJAO), a Council of the Arthritis Foundation, is devoted to serving the special needs of children, teens, and young adults with childhood rheumatic ...
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Angelman Syndrome Foundation
The Angelman Syndrome Foundation (ASF) is a parent support and research group founded in 1987 to provide information and support to families. Angelman syndrome is a neurological disorder associated ...
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Arthritis Foundation
Provides and promotes collaborative programs about the latest drug treatments, management of all forms of arthritis and the Arthritis Foundation's services to consumers, families and health ...
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Arthritis National Research Foundation
The Arthritis National Research Foundation provides funding for highly qualified post-doctoral researchers associated with major research institutes, universities and hospitals throughout the country ...
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Association for Neuro-Metabolic Disorders
The Association for Neuro-Metabolic Disorders, (ANMD), a non-profit organization, was founded in 1984 at the University of Michigan Medical Center, Ann Arbor. ANMD's primary objective is to serve as ...
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Beckwith-Wiedemann Support Network
Beckwith-Wiedemann Syndrome (BWS) is a congenital growth related disorder. There are roughly thirty characteristics which can be associated with BWS. Most often seen are enlarged tongue, umbilical ...
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Birth Defects Research for Children, Inc.
Birth Defect Research for Children provides information and support to families of children with birth defects. BDRC sponsors research on birth defects caused by exposures to environmental ...
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CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support
CHERUBS is a volunteer nonprofit organization that provides support, information and resources related to Congenital Diaphragmatic Hernia (CDH). Membership in the organization is open to adult ...
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Children's PKU Network
Children's PKU Network is a non-profit agency founded in 1991by the parents of a child diagnosed with PKU (Phenylketonuria). The agency offers support through various programs to assist families with ...
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Cornelia de Lange Syndrome Foundation, Inc.
The Cornelia de Lange Syndrome Foundation is an organization dedicated to ensuring early and accurate diagnosis of CdLS ( a congenital syndrome, present from birth, that usually results in ...
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Crisis Clinic
Clear and concise tips for caregivers. Advice on whom to contact and how to get help. Community information line for more info.
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Diabetes Insipidus Foundation, Inc.
A nonprofit organization, the Diabetes Insipidus Foundation, Inc. provides information, advocacy and referrals for patients, families and professionals who are interested in Diabetes Insipidus. The ...
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Division of Diabetes Translation, National Center for Chronic Disease Prevention and Health Promotio
The mission of the Division of Diabetes Translation (DDT) is to reduce the burden of diabetes in the United States by planning, conducting, coordinating, and evaluating federal efforts to translate ...
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Emergency Medical Services for Children
EMSC is a national initiative designed to reduce child and youth disability and death due to severe illness and injury. The initial goal is to prevent childhood illness or injury or, when prevention ...
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Glaucoma Research Foundation
The Glaucoma Research Foundation (GRF) is a national, nonprofit organization dedicated to protecting the sight of people who have glaucoma through research and education. GRF was established in 1978 ...
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